Seizure Tracker

Seizure Tracker Seizure Tracker empowers people living with seizures to take control of their own healthcare.

Would the people around you know what to do in an emergency involving a seizure?A Seizure Action Plan gives family membe...
06/08/2026

Would the people around you know what to do in an emergency involving a seizure?

A Seizure Action Plan gives family members, friends, teachers, coworkers, caregivers, and first responders clear instructions when they matter most.

The Seizure Tracker Dynamic Seizure Action Plan (DSAP) helps you organize important details, including seizure types, response steps, daily medications, rescue medications, emergency contacts, and care provider information.

You can print or securely share your plan, so it’s available when and where it’s needed.

Preparedness can bring confidence, reduce uncertainty, and help others respond quickly and appropriately.

Learn more and create your DSAP: https://bit.ly/4ahjb1n

Real-world seizure tracking can help advance epilepsy research.In a peer-reviewed study, researchers analyzed data from ...
06/03/2026

Real-world seizure tracking can help advance epilepsy research.

In a peer-reviewed study, researchers analyzed data from 30,813 SeizureTracker users to better understand SUDEP-related risk factors that can be captured through electronic seizure diaries.

The 2022 study found that electronic patient-reported data may be a valuable tool for expanding SUDEP risk-factor research and supporting future approaches to risk evaluation.

At Seizure Tracker, we’re proud to support research that helps deepen understanding of epilepsy and the real-world experiences of people living with seizures.

Learn more: https://bit.ly/4anmGUO

Clinical trials help move epilepsy care forward.Every medication or therapy available today exists because people partic...
05/27/2026

Clinical trials help move epilepsy care forward.

Every medication or therapy available today exists because people participated in research. Clinical trials are a formal way to study better ways to diagnose, prevent, treat, and understand epilepsy.

For people living with seizures, participating in research may help advance future care and, in some cases, provide access to therapies not yet widely available.

Seizure Tracker’s Clinical Trials page helps explain what clinical trials are, what to consider, and how to begin exploring studies that may be relevant to you or your loved one.

Learn more: https://bit.ly/4e4P0h4

Help shape how epilepsy treatment success is measured.If you have—or care for someone with—a neuromodulation device like...
05/22/2026

Help shape how epilepsy treatment success is measured.

If you have—or care for someone with—a neuromodulation device like RNS, VNS, DBS, or EASEE, your experience matters. These therapies may affect more than seizure counts, including mood, thinking, energy, and daily life.

This survey asks patients, caregivers, and clinicians which outcomes matter most when evaluating the success of neuromodulation treatment.

It takes about 10–15 minutes, and your input can help create better ways to measure the full impact of epilepsy treatment.

Take the survey: https://www.myepilepsylife.org/

Research in epilepsy care is evolving beyond seizure counts alone.A recent study involving participants recruited throug...
05/20/2026

Research in epilepsy care is evolving beyond seizure counts alone.

A recent study involving participants recruited through Seizure Tracker explored what quality-of-life outcomes matter most to people living with epilepsy and functional seizures. Researchers found that mental health, fatigue, cognition, healthcare burden, and emotional well-being were among the top concerns identified by patients, with suicidal ideation emerging as one of the most significant differences between groups.

These findings reinforce the importance of whole-person epilepsy care that includes both neurological and mental health support.

At Seizure Tracker, we’re proud to support research efforts that help advance more informed, compassionate, patient-centered care.

Learn more: https://bit.ly/3KmMDuc

Today, on TSC Global Awareness Day, we’re raising awareness of Tuberous Sclerosis Complex (TSC), a rare genetic disorder...
05/15/2026

Today, on TSC Global Awareness Day, we’re raising awareness of Tuberous Sclerosis Complex (TSC), a rare genetic disorder that affects nearly 1 million people worldwide.

Epilepsy is one of the most common neurological challenges associated with TSC, affecting approximately 85% of individuals living with the condition. Tracking seizure activity can play an important role in understanding patterns, evaluating therapies, and supporting informed care decisions.

Learn more about seizures and TSC in our Seizure Success® and You! library: https://bit.ly/4ntjA76

During National Women’s Health Week, we’re recognizing the important connection between women’s health and epilepsy care...
05/13/2026

During National Women’s Health Week, we’re recognizing the important connection between women’s health and epilepsy care.

Hormones, menstrual cycles, pregnancy, and birth control can all influence seizure patterns, which is why Seizure Tracker offers tools designed to help women track and better understand these changes over time.

By collecting detailed information, individuals and care teams can have more informed conversations about seizure management and treatment decisions.

Learn more: https://bit.ly/3LcjtOy

Managing seizures often involves a team, and the Seizure Tracker Valet system helps keep everyone connected.With Seizure...
05/08/2026

Managing seizures often involves a team, and the Seizure Tracker Valet system helps keep everyone connected.

With Seizure Tracker Valet access, you can share a secure “Valet key” with caregivers, medical providers, or school staff. Each person receives only the tools you allow, whether that’s recording events, reviewing data, or generating reports.

You stay in control, and your support network stays informed.

Learn more: https://bit.ly/4p3rqUg

Vagus Nerve Stimulation (VNS) is one of several tools used to help manage seizures when medications alone aren’t enough....
05/06/2026

Vagus Nerve Stimulation (VNS) is one of several tools used to help manage seizures when medications alone aren’t enough.

VNS therapy uses a small implanted device that sends mild electrical pulses through the vagus nerve to the brain, helping reduce seizure frequency and severity over time.

Tracking plays an important role here.

By logging seizures, timing, and therapy changes, individuals and care teams can better understand:

• How seizure patterns evolve over time
• How therapies like VNS may be impacting control
• What adjustments may be worth discussing

At Seizure Tracker, we’re continuing to build tools and resources to support these conversations.

Learn more about VNS and seizure management: https://bit.ly/4tefnpj

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